Friday, February 26, 2016

Is gene editing to correct disability always the right choice?

In the fierce debate about CRISPR gene editing, it’s time to give patients a voice.

Ruthie Weiss’s basketball team seemed to be minutes away from its fourth straight loss. But even as she stood on the sidelines for a brief rest, the nine-year-old had not given up. She convinced the coach to put her back in the game. Then, she charged out onto the court, caught a pass from a teammate and drove straight to the basket. Swish! Ruthie scored a quick two points, putting her team in the lead. As the game clock wound down, she scored again, clinching the victory. The team had earned its first win of the season, and celebrated as if it had just taken the national championship. A couple of parents from the opposing team even stopped by to congratulate Ruthie, who had scored all of her team’s 13 points: “Wow, she’s unbelievable!” they told her mum and dad.....

To Read More

My Take - I've posted this article because it is a demnostration of how what should be straight forward conclusions gets blurred with what I consider nothing short of rhetorical nonsense.  If something is broken it needs fixed.   Genetic mutations such as albinism are the result of broken parts, and the impact of "broken parts" gets worse as people with these kinds of mutations age.   If it can be fixed it should be fixed.  Everything else is intellectual clabber.  And nine year old girls don't have opinions on this kind stuff that hasn't been formed in some way by their parents.

No comments: